top of page

Tue, Jun 20



The Psychological Effects of Living with a Rare Bone Disease on Patients and Families

Webinar Co-Chairs: Jennifer Paulson (Soft Bones Canada) Dr. Leanne Ward (Canadian Alliance for Rare Disorders and Professor/Research Chair in Pediatric Bone Disorders, University of Ottawa) Dr. Cheryl Greenberg (Distinguished Professor and Clinician Scientist, University of Manitoba)

Registration is closed
See other events

Time & Location

Jun 20, 2023, 7:00 PM – 8:30 PM EDT


About the Webinar

This is a free webinar for patients and families living with rare muscle and bone disorders.


Registration is required. 


This webinar is brought to you by a partnership between Canadian Patient Advocacy Groups 

and the Canadian Alliance for Rare Disorders of the Skeleton 

Register to Attend


    Sale ended



Share this event

Empowering children, adults, and families living with bone diseases.

bottom of page