The BonesCanada is led by bone health and disease advocates from a variety of different backgrounds, including pediatrics, endocrinology, oncology, neurology, radiology, nephrology, kinesiology, and orthopedic surgery. In addition, the team is supported by The Ottawa Pediatric Bone Health Research Group, a team comprised of scientists and research staff with expertise in skeletal imaging and genetics, database design and management, statistical analysis, clinical trials, and bone disease research methodology.
Over the last two decades, the Research Group’s efforts have been devoted to the care and study of individuals with childhood-onset disorders such as osteogenesis imperfecta and other skeletal dysplasias, various forms of rickets, acute and chronic illness-related bone morbidity, and Duchenne muscular dystrophy.
BonesCanada activities are supported by numerous local and national funding agencies and partners including Statistics Canada and the Canadian Health Measures Survey, The Canadian Institutes of Health Research, PSI Foundation, Muscular Dystrophy Canada, Soft Bones Canada, XLH Canada!, Jesse’s Journey, Parent Project Muscular Dystrophy, the Pediatric Orthopedic Society of North America, and the Canadian STeroid-associated Osteoporosis in the Pediatric Population (STOPP) Consortium.
Over the years, BonesCanada team members have also forged fruitful partnerships in clinical guideline development, advocacy, and/or research collaboration with the private sector, The Foundation to End Duchenne, The Finding the Optimal Regimen (FOR) DMD Research Group, The International Conference on Children’s Bone Health, The Canadian Pediatric Surveillance Program, The International Society for Clinical Densitometry, The U.S. Centres for Disease Control, and the Horizon 2020 European Commission.
Empowering children, adults, and families living with bone diseases.