top of page

UPCOMING EVENTS
FOR PATIENTS, FRIENDS & FAMILIES

0 DAYS TO THE EVENT
When
Feb 27, 2024, 7:00 PM – 9:00 PM EST
Where
Webinar
Join Us
Details

PAST

EVENTS

February 27, 2024
CARDS
Educational Webinar in Collaboration with the Canadian Osteogenesis Imperfecta Society (COIS)

Keynote Address:

Dr. Angela Cheung, PhD, MD, FRCPC, Professor, University of Toronto, Toronto General Hospital

“Osteogenesis Imperfecta and Women's Health" 

Watch the event recording. Click here.

November 21, 2023
CARDS
Educational Webinar in Collaboration with The Canadian XLH Network

Keynote Address:

Dr. Aliya Khan, Professor of Clinical Medicine, Director, Calcium Disorders Clinic, Director of Fellowship in Metabolic Bone Disease, McMaster University

“XLH and Aging" 

Watch the event recording. Click here.

June 20, 2023
CARDS
Educational Webinar in Collaboration with Soft Bones Canada

Keynote Address:

Dr. Natalie Truba, Psychologist and Clinical Assistant Professor, Ohio State University, Nationwide Children's Hospital

“Hypophosphatasia: The Psychological Effects of Living with a Rare Bone Disease on Patients & Families”

Watch the event recording. Click here.

January 31, 2023
CARDS
Educational Webinar in Collaboration with Rare Bone Disease Groups Across Canada

Keynote Address:

Dr. Durhane Wong-Rieger, President & CEO, Canadian Organization of Rare Disorders

“Rare Bone Diseases in Canada: The Adult Perspective”

Watch the event recording. Click here.

November 29, 2022
CARDS
Educational Webinar in Collaboration with the Canadian XLH Network

Keynote Address:

Dr. Jean-Philippe Vaccani, Children's Hospital of Eastern Ontario

“Hearing and XLH”

Watch the event recording. Click here.

May 31, 2022
CARDS Educational Webinar, a Partnership between The Canadian OI Society and the Canadian Alliance for Rare Disorders
Keynote Address:

Dr. Jean-Marc Retrouvey, DMD, MSc, University of Missouri-Kansas City, USA

“Dentofacial Issues in OI Current Knowledge and Future Directions”

Watch the event recording. Click here.

April 19, 2022
CARDS Educational Webinar, in Collaboration with the Canadian XLH Network
Keynote Address: Dr. Robert Schroth, University of Manitoba

“Dental Health in XLH”

Watch the event recording. Click here.

March 29, 2022
CARDS Educational Webinar, in Collaboration with the Canadian Osteogenesis Imperfecta Society (COIS)
Keynote Address: Dr. Sherri Katz, University of Ottawa

“OI & Respiratory Health in a Global Pandemic Era”

Watch the event recording. Click here.

October 26, 2021
CARDS Educational Webinar, in Collaboration with Canadian Osteogenesis Imperfecta Society (COIS)

Keynote Address: Dr. Frank Rauch and Dr. Leanne Ward

“Current Issues in the Optimal Management of Osteogenesis Imperfecta: a Canadian Perspective”

Watch the event recording. Click here.

September 14, 2021
CARDS Educational Webinar, in Collaboration with Canadian XLH Network
Keynote Address: Dr. Erik Imel and Dr. Leanne Ward

“Starting the Conversation: What Patients and Families Living with X-Linked Hypophosphatemia Need to Know”

Watch the event recording. Click here.

July 28, 2021
CARDS Educational Webinar, in Collaboration with Canadian XLH Network
Keynote Address: Dr. Erik Imel and Dr. Leanne Ward

“Starting the Conversation: What Patients and Families Living with X-Linked Hypophosphatemia Need to Know”

Watch the event recording. Click here.

March 26, 2021
CARDS Educational Webinar, in Collaboration with Soft Bones Canada
Keynote Address: Dr. Cheryl Rockman-Greenberg, University of Manitoba

“The Three R’s of Hypophosphatasia: Rainbows, Realism, and Resiliency”

Watch the event recording. Click here.

Empowering children, adults, and families living with bone diseases.

bottom of page