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UPCOMING EVENTS
FOR PATIENTS, FRIENDS & FAMILIES
PAST
EVENTS
June 20, 2023
CARDS Educational Webinar in Collaboration with Soft Bones Canada
Keynote Address:
Dr. Natalie Truba, Psychologist and Clinical Assistant Professor, Ohio State University, Nationwide Children's Hospital
“Hypophosphatasia: The Psychological Effects of Living with a Rare Bone Disease on Patients & Families”
January 31, 2023
CARDS Educational Webinar in Collaboration with Rare Bone Disease Groups Across Canada
Keynote Address:
Dr. Durhane Wong-Rieger, President & CEO, Canadian Organization of Rare Disorders
“Rare Bone Diseases in Canada: The Adult Perspective”
November 29, 2022
CARDS Educational Webinar in Collaboration with the Canadian XLH Network
Keynote Address:
Dr. Jean-Philippe Vaccani, Children's Hospital of Eastern Ontario
“Hearing and XLH”
May 31, 2022
CARDS Educational Webinar, a Partnership between The Canadian OI Society and the Canadian Alliance for Rare Disorders
Keynote Address:
Dr. Jean-Marc Retrouvey, DMD, MSc, University of Missouri-Kansas City, USA
“Dentofacial Issues in OI Current Knowledge and Future Directions”
April 19, 2022
CARDS Educational Webinar, in Collaboration with the Canadian XLH Network
Keynote Address: Dr. Robert Schroth, University of Manitoba
“Dental Health in XLH”
March 29, 2022
CARDS Educational Webinar, in Collaboration with the Canadian Osteogenesis Imperfecta Society (COIS)
Keynote Address: Dr. Sherri Katz, University of Ottawa
“OI & Respiratory Health in a Global Pandemic Era”
October 26, 2021
CARDS Educational Webinar, in Collaboration with Canadian Osteogenesis Imperfecta Society (COIS)
Keynote Address: Dr. Frank Rauch and Dr. Leanne Ward
“Current Issues in the Optimal Management of Osteogenesis Imperfecta: a Canadian Perspective”
September 14, 2021
CARDS Educational Webinar, in Collaboration with Canadian XLH Network
Keynote Address: Dr. Erik Imel and Dr. Leanne Ward
“Starting the Conversation: What Patients and Families Living with X-Linked Hypophosphatemia Need to Know”
July 28, 2021
CARDS Educational Webinar, in Collaboration with Canadian XLH Network
Keynote Address: Dr. Erik Imel and Dr. Leanne Ward
“Starting the Conversation: What Patients and Families Living with X-Linked Hypophosphatemia Need to Know”
March 26, 2021
CARDS Educational Webinar, in Collaboration with Soft Bones Canada
Keynote Address: Dr. Cheryl Rockman-Greenberg, University of Manitoba
“The Three R’s of Hypophosphatasia: Rainbows, Realism, and Resiliency”
Empowering children, adults, and families living with bone diseases.